Company profile for Grace Science

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About

Grace was born in 2009 with a rare, debilitating disease. Deep in confusion and grief, Kristen and Matt Wilsey were faced with three options: Go home and simply enjoy their daughter. To them, this was akin to “giving up”. Focus 100% on improving the quality of Grace’s daily life through therapy. Find a cure themselves. They went with option 3 and set out to find a cure. After receiving Grace’s diagnosis in 2013, Ma...
Grace was born in 2009 with a rare, debilitating disease. Deep in confusion and grief, Kristen and Matt Wilsey were faced with three options: Go home and simply enjoy their daughter. To them, this was akin to “giving up”. Focus 100% on improving the quality of Grace’s daily life through therapy. Find a cure themselves. They went with option 3 and set out to find a cure. After receiving Grace’s diagnosis in 2013, Matt and Kristen established the Grace Science Foundation to fund research by premier labs around the world to better understand NGLY1 Deficiency. This research rapidly produced numerous insights into the disease.

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CONTACT DETAILS

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Country
Country
U.S.A
Address
Address
1142 Crane Street, Ste 4 Menlo Park, CA 94025
Telephone
Telephone
1 (415) 985-6211
youtube
YouTube

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NEWS #PharmaBuzz

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FDA picks Denali, Neurogene and more for rare disease program
FDA picks Denali, Neurogene and more for rare disease program

04 Jun 2024

// Helen Floersh FIERCE BIOTECH

https://www.fiercebiotech.com/research/fda-selects-denali-neurogene-larimar-and-grace-sciences-rare-disease-therapy-pilot

Helen Floersh FIERCE BIOTECH
04 Jun 2024

https://www.businesswire.com/news/home/20240603258576/en

BUSINESSWIRE
03 Jun 2024

https://www.businesswire.com/news/home/20240304132147/en

BUSINESSWIRE
05 Mar 2024

https://www.businesswire.com/news/home/20231106501186/en

BUSINESSWIRE
07 Nov 2023

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